(AGENPARL) – lun 28 novembre 2022 [Se non leggi correttamente questo messaggio, clicca qui](https://customer16815.musvc2.net/e/r?q=L2%3dAHL3L_Fsfs_Q3_5tqr_E9_Fsfs_P8nY6Sr.FyAyND5yB3F7.6CE_5tqr_E94_Jdvn_TsKBD.nLDP_5tqr_E9_Fsfs_Q8sB8_Jdvn_UqIIHBNL3LB0_Jdvn_UqK_Fsfs_P8-v_Kouc_UTP_5tqr_F7DN_5tqr_EY_Fsfs_Q63KDLFXzS_5tqr_EYL_Jdvn_UqIJ_Jdvn_TI7_Fsfs_Q6pbRX5b2_Jdvn_TIQ_Fsfs_Q63O_Fsfs_PXM_Kouc_UTP_5tqr_F7DH_5tqr_EYLOHZX8nX14JX8P_5tqr_EYL_Jdvn_UqIJ_J3n4ydvn_TI_Kouc_UT6_5tqr_F7GLBOKpPok%265%3dDYVSH%267%3dAM6O1T.18H%26A6%3dUUYEc%260%3dW%261%3dVOUE%26H%3dQVFZO%26L%3dLbQXKUTWM&mupckp=mupAtu4m8OiX0wt)
Siamo lieti di presentare la IX Edizione del Premio OMaR che si svolgerà giovedì 15 dicembre presso l’Acquario Romano a Roma.
Ideato da [Osservatorio Malattie Rare](https://customer16815.musvc2.net/e/t?q=3%3dOXQQS%26D%3dN%26D%3dQSLR%26C%3dUMSUS%26D%3d1y3t8HL9_Houi_Sy_Jjsn_Ty_Houi_R4OFM.CKB5FNtJCJ2EA351HL25F3A5.7L%26w%3dCIKE3P.FxJ%267K%3dKWUTS&mupckp=mupAtu4m8OiX0wt), il Premio è organizzato in collaborazione con [Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità](https://customer16815.musvc2.net/e/t?q=8%3dIWNVM%26C%3dK%26I%3dKRIW%267%3dTJXOR%26A%3d6s2qCBK6N_0riu_K2_8vkq_HA_0riu_J7CRE.44M.1K_8vkq_HA%26v%3dDAND4H.IwK%26yN%3dJXMWR&mupckp=mupAtu4m8OiX0wt), [CNAMC-Coordinamento Nazionale delle Associazioni dei Malati Cronici di Cittadinanzattiva](https://customer16815.musvc2.net/e/t?q=0%3dJVJXN%26B%3dG%26K%3dLQEY%268%3dSFZPQ%267%3dECJ2_Ojsb_Zt_Hczi_Rr_Ojsb_YyM9T.61x8CJuBA14B.v96Qt4uKtDB8CJuSt.96_Ojsb_YyBq-8BI1021BF8Du8t1m-A2-FmW25zQ2-1rCxJ6F-w1-y8516Q21-48A5-mAxHqKC9-mI-vDmJv.86J5%264%3dyRBLoY.756%26FB%3dRIdKZ&mupckp=mupAtu4m8OiX0wt), [Fondazione Telethon](https://customer16815.musvc2.net/e/t?q=8%3d3ZEV7%26F%3dB%26I%3d5U0W%26q%3dWAX9U%262%3d6c5hCvNwN_tuZu_55_yvUt_9A_tuZu_404Ry.NlGgNoJp.C1_MSwW_Wh%268%3dtPuPjW.p91%26Du%3dVDb4d&mupckp=mupAtu4m8OiX0wt), [Orphanet Italia](https://customer16815.musvc2.net/e/t?q=7%3dMbFUQ%26H%3dC%26H%3dOWAV%26A%3dYBWSW%263%3dBFPxM_Dwat_O7_zuov_00_Dwat_NB5QI.KzJ47.v9F_NYwl_Xn7AJ1IDZ.HU_Dwat_NB5QI_NYwl_Xn73E-jC0_N5w7iYwl_XnC00mR.BDx_LmyX_W2HvA_Dwat_O0Qx%26z%3dI3MH90.H1P%26qM%3dNcEVV&mupckp=mupAtu4m8OiX0wt) e [SIMeN-Società Italiana di Medicina Narrativa](https://customer16815.musvc2.net/e/t?q=4%3dJYMRN%26E%3dJ%26E%3dLTHS%268%3dVITPT%260%3d2t4p9CM5J_Athq_L4_7rls_G7_Athq_K9BNF.Ft526xEtGpIA490E4.36CP4I4_Kfti_Uu%265%3d6N8MvU.36C%26B8%3dSPZGa&mupckp=mupAtu4m8OiX0wt) e annovera tra i partner [Ability Channel](https://customer16815.musvc2.net/e/t?q=5%3dCZCSG%26F%3d0%26F%3dEU8T%261%3dW9UIU%26z%3d3m5f06NuK_4uXr_E5_wset_78_4uXr_D02O9.5gAxCyQoBfFz9q.L8_LVub_Vk%266%3dyOxNoV.s76%26Cx%3dTIa7b&mupckp=mupAtu4m8OiX0wt), [FERPI-Federazione Relazioni Pubbliche Italiana](https://customer16815.musvc2.net/e/t?q=4%3dKdSRO%26J%3dP%26E%3dMYNS%269%3daOTQY%26F%3d2u9v9DRAJ_Bynq_M9_Crmx_M7_Bynq_LDHNG.DzI0G.4K_Bynq_LD%26y%3dDEQG4L.LzK%263Q%3dMXQZU&mupckp=mupAtu4m8OiX0wt) e [Festival cinematografico “Uno Sguardo Raro”.](https://customer16815.musvc2.net/e/t?q=9%3d3WFW7%26C%3dC%26J%3d5RAX%26q%3dTBY9R%263%3d7c2iDvKxO_trav_52_zwUq_0B_trav_475Sy.LvKu837t5wNcIw.Kt8_zwUq_0B%26f%3dD3Ox40.JgK%26qO%3d4XEXB&mupckp=mupAtu4m8OiX0wt)
Anche quest’anno la Giuria premierà, tra i lavori pervenuti, quelli che hanno saputo comunicare al meglio il mondo delle malattie e dei tumori rari in una forma scientificamente rigorosa ma nello stesso tempo comprensibile, coinvolgente e originale.
Per il secondo anno consecutivo, inoltre, la nuova edizione del Premio OMaR sarà arricchita dal Premio Connessioni, i cui riconoscimenti verranno assegnati a una serie di personalità che hanno avuto la capacità, ciascuno per il proprio specifico ambito, di creare sinergie positive per il settore.
La Cerimonia di Premiazione prenderà avvio alleore 16:30 con l’assegnazione dei premi di comunicazione.
L’iniziativa è stata realizzata grazie al contributo non condizionante di [Alexion](https://customer16815.musvc2.net/e/t?q=6%3dEZDTI%26F%3dA%26G%3dGU9U%263%3dW0VKU%261%3d4o5gA8NvL_6uYs_G5_xtgt_89_6uYs_F0gEsRoH2.7uF_6uYs_F0%26j%3dF9M26F.HkM%26wM%3d8ZKVF&mupckp=mupAtu4m8OiX0wt), [Amicus Therapeutics](https://customer16815.musvc2.net/e/t?q=9%3dGXRWK%26D%3dO%26J%3dISMX%265%3dUNYMS%26E%3d7q3uD0L0O_8smv_I3_Bwir_LB_8smv_H8uIy5EO8P.wK3_Jkyf_Tz%260%3d3MCRsT.8A0%26AC%3dXMYLf&mupckp=mupAtu4m8OiX0wt), [APR Applied Pharma Research (parte di Relief Therapeutics)](https://customer16815.musvc2.net/e/t?q=7%3dKWPUO%26C%3dM%26H%3dMRKV%269%3dTLWQR%26C%3d5u2sBDK8M_Brkt_M2_0umq_J0_Brkt_L7EQG.28L.w9_0umq_J0%26x%3dDCMF4J.HyK%261M%3dLXOVT&mupckp=mupAtu4m8OiX0wt), [Boehringer Ingelheim](https://customer16815.musvc2.net/e/t?q=5%3d8bASB%26H%3d8%26F%3d0W6T%26v%3dY7UDW%26x%3d3h7d01PsK_ywVr_07_usZv_58_ywVr_9BzO4.8r7oNlFnAu-AuChDoAlE.pP_usZv_58%26k%3dIxK395.FlP%26lK%3d9c0TG&mupckp=mupAtu4m8OiX0wt), [Chiesi Global Rare Diseases Italia](https://customer16815.musvc2.net/e/t?q=A%3dFWEYJ%26C%3dB%26L%3dHR0Z%264%3dTAaLR%262%3d9p2hF9KwQ_7rZx_H2_yyhq_9D_7rZx_G74UB.4oGtJp.A4D_yyhq_9D72yC_7rZx_G7%26k%3dK0J3AG.ElR%26xJ%3d9eLSG&mupckp=mupAtu4m8OiX0wt), [Incyte](https://customer16815.musvc2.net/e/t?q=8%3dDZ9VH%26F%3d6%26I%3dFU4W%262%3dW5XJU%26v%3d6n5bC7NqN_5uTu_F5_svft_3A_5uTu_E0xR0.Co8BNf.82G_svft_3A%26q%3dGvN973.IrN%26jN%3dEa8WM&mupckp=mupAtu4m8OiX0wt), [Mirum](https://customer16815.musvc2.net/e/t?q=5%3d1aVS5%26G%3dS%26F%3d3VQT%26o%3dXRU7V%26I%3d3a6y0tODK_rvqr_36_FsSu_P8_rvqr_2AAArPAHh6FEa.8CE_rvqr_2A%262%3dEuNJ52.I3L%26iN%3dPY7WX&mupckp=mupAtu4m8OiX0wt), [Novartis](https://customer16815.musvc2.net/e/t?q=0%3d6bJX0%26H%3dG%26K%3d8WEY%26t%3dYFZBW%267%3d8f7mEyP2P_wwew_87_4xXv_DC_wwew_7B9T2.J1SfN6Fx.91J_wwew_7BuQ-nP_4xXv_DC%26i%3dI7P19D.KjP%26uP%3d7cIYE&mupckp=mupAtu4m8OiX0wt), [Orchard Therapeutics](https://customer16815.musvc2.net/e/t?q=0%3d6dVX0%26J%3dS%26K%3d8YQY%26t%3daRZBY%26I%3d8f9yEyRDP_wyqw_89_FxXx_PC_wyqw_7DKT2.MF0m9FA-yV.1Lr_PozU_Z4%26A%3drSGShZ.BBy%26GG%3dYBePg&mupckp=mupAtu4m8OiX0wt), [Pfizer](https://customer16815.musvc2.net/e/t?q=7%3dAaKUE%26G%3dH%26H%3dCVFV%26y%3dXGWGV%268%3d5k6nB4O3M_2vft_C6_5ucu_E0_2vft_BA0Q7.KsC005.C4_MdwZ_Ws%268%3dwP6PmW.194%26D6%3dVGbEd&mupckp=mupAtu4m8OiX0wt), [PIAM Farmaceutici](https://customer16815.musvc2.net/e/t?q=7%3dCVHUG%26B%3dE%26H%3dEQCV%261%3dSDWIQ%265%3d5m1kB6JzM_4qct_E1_2uep_B0_4qct_D67Q9.Fs5y6kLy1m97Js7u.3yG_4qct_D6%26n%3dG7I67D.DoN%26uI%3dBaIRJ&mupckp=mupAtu4m8OiX0wt), [PTC Therapuetics](https://customer16815.musvc2.net/e/t?q=6%3dHdRTL%26J%3dO%26G%3dJYMU%266%3daNVNY%26E%3d4r9uAAR0L_9yms_J9_Btjx_L9_9yms_IDGPD.ND6sG9.66K_Btjx_L9%26u%3dKELCAL.GvR%263L%3dIeQUQ&mupckp=mupAtu4m8OiX0wt), [Roche](https://customer16815.musvc2.net/e/t?q=4%3dId0RM%26J%3d7%26E%3dKY5S%267%3da6TOY%26w%3d9BRrJ_0yUq_K9_trkx_47_0yUq_JDyNE.Pq4zC.kK_0yUq_JDkK_0yUq_JDf0sEpFARk4A.FvD4%26B%3doLATeS.6Cv2s9c%260A%3dZ9XJh&mupckp=mupAtu4m8OiX0wt), [Sanofi](https://customer16815.musvc2.net/e/t?q=A%3dMaQYQ%26G%3dN%26L%3dOVLZ%26A%3dXMaSV%26D%3d9w6tFFO9Q_Dvlx_O6_Ayou_KD_Dvlx_NAFUI.NtLAA2.GF_Mj1l_Wy%26B%3d9PBTyW.7CF%26DB%3dZSbKh&mupckp=mupAtu4m8OiX0wt), [Sobi](https://customer16815.musvc2.net/e/t?q=3%3d9dPQC%26J%3dM%26D%3dAYKR%26w%3daLSEY%26C%3d1i9s82R8I_zykp_A9_0qax_J6_zykp_0DAEjG-1JiJ11.qR_0qax_J6%26l%3dKCI4AJ.DmR%261I%3d0eORH&mupckp=mupAtu4m8OiX0wt), [Takeda](https://customer16815.musvc2.net/e/t?q=3%3d9dEQC%26J%3dB%26D%3dAY0R%26w%3daASEY%262%3d1i9h82RwI_zyZp_A9_yqax_96_zyZp_0D4M5.RhAmBh.3wK_yqax_96qR-pJ_zyZp_0D%26k%3dC3Q330.LlJ%26qQ%3d9WEZG&mupckp=mupAtu4m8OiX0wt), [Travere Therapeutics.](https://customer16815.musvc2.net/e/t?q=3%3dHd8QL%26J%3d5%26D%3dJY3R%266%3da4SNY%26u%3d1r9a8ARpI_9ySp_J9_rqjx_26_9ySp_IDtHrTeHv.AoC_9ySp_ID%26d%3dCBQv3I.LeJ%26zQ%3d2WNZ0&mupckp=mupAtu4m8OiX0wt)
UFFICIO STAMPA OSSERVATORIO MALATTIE RARE (OMaR)